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2006-10-31 20:19:16

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[RE]Information

2006-10-31 16:59:08

From : "Gillian Rowe" <roweg@...
It tells me that I now understand b. all!
If the AIDS patients' immunocells are comatose and
ours are having a free for all party why do they get
PA? Or is our disease not an auto-immune problem?
Woman, you really ask the most polemic questions!
Greetings.
Margaretha,
<hr
Tu correo gratis en MixMail http://www.mixmail.com
Inicia tu navegacion en http://www.ya.com

test...

2006-10-31 08:23:14

Nancy;
I agree with you 100%. I took a food sensitivity test, more expensive
than an elimination diet on your own though. I had other tests as well
- gut permeability (sp?) diet analysis, hair analysis and a few others.
Have a great day,
GS

To Linda, Mouth Sores

2006-10-31 00:19:57

Linda,
If you don't mind, could you please post the name of the prescription
your TMJ Dr. gave you. I'm still having a small problem with mouth sores.
It seems that once I've got one, it takes 10 days to 2 weeks to heal. I
increased my folic acid also.
thanks
Shayne

The Magician &amp; the Parrot

2006-10-30 22:44:04

A magician was working on a cruise ship in the Caribbean. The audience
would be different each week, so the magician allowed himself to do the
same tricks over and over again.
There was only one problem:
The captain's parrot saw the shows every week and began to understand
what the magician does in every trick.
Once he understood that, he started shouting in the middle of the show:
Look, it's not the same hat! Look, he is hiding the flowers under
the table! Hey, why are all the cards the Ace of Spades ?
The magician was furious but couldn't do anything, it was the captain's
parrot after all.
One day the ship had an accident and sunk.
The magician found himself on a piece of wood, in the middle of the
ocean,
with the parrot of course.
They stared at each other with hate, but did not utter a word.
This went on for a day, and another, and another.
After a week the parrot finally said: OK. I give up.
What'd you do with the boat ?

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2006-10-30 19:55:59

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2006-10-30 06:53:32

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2006-10-30 03:06:31

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2006-10-29 20:52:26

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2006-10-29 17:53:23

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To Nancy re itchy P

2006-10-29 08:56:44

Hi Nancy,
Yes, I have tried the lights and it was wonderful ( except having to go into
the tank TOTALLY naked..didn't like that!!. Anyway, it was about 3 yrs
ago..started the lights in March and by June, all the P was gone. At that
time I was working in the hospital, M-F and it was so conveneint, would just
pop down on my break. Anyway, now I'm not working ( because of PA) and the
hospital is a 40 minute drive 1 way, so am not willing to go there everyday.
But I agree, and if I ever get back to work and on the M-F shift, I'd do it
again.
Angela

when I started DMARDS..Gillian

2006-10-28 22:39:43

Hi Gillian,
Nice to hear from you. I have had psoriasis since I was a young child, as
far back as I can remember. I'm sure I had tried every cream and shampoo
going. When it was only P, I had tons of creams to put on. I still do to
this day. I was diagnosed with PA at 25 and was started on feldene, which I
ended up being allergic to. Then it was indocid. This was until this past
March. At one time..can't remember exactly when, I had a bit of a flare and
was put on sulphasalazine. It didn't do much and was stopped. Two years ago
this May, I was getting worse and started on MTX..which has been increased
every so often and I am still taking. Then , in March, while in hospital,
indocid was stopped and arthrotec,plaquenil and elavil were started. Gold
was started this past June and prednisone just 3 days ago. So, as you can
see, I went almost 7 years on only indocid. I am at a bad stage now and I
wonder if I'd have been started on a DMARD earlier if I'd be here now.
Angela

To Helen re shingles on legs ( or whoever else)

2006-10-28 22:11:33

From: "Helen Pond" <hpond@...
Hi Helen,
You've got my kind thinkin again! I have had these ugly little " things" on
my legs for a month or more ( the calves of both legs, front and back, but
just on the calves)..they started as pain kindof inside my legs ( not severe
pain, just achiness kind of) then..I don't know like a hive or pimple or
something, but VERY,VERY itchy!! And now I have these lovely little scabs
all over the same area...it almost looks like the scabs are over little
holes in my legs... showed them to the doc the other day..but she was
looking at my P too, at the same time. She didn't say anything about them.
Could they be shingles? Wouldn't hives or whatever have gone away by now?
You just got me thinking!
Angela

The Sales are ON!

2006-10-28 15:13:16

Hi All
I went shopping today, well took Mom to have her hair cut, after I offered
to try it with a basin and scissors. I also offered to give her a 'blue
rinse' but we had no blue bag in the home!
Having deposited Mom at the hair salon, I walked towards the bank, when who
did I run into but Gerald! Gerald is my Cousin, approximately 67 years of
age, a bachelor with his own business and a real gentleman! He is also a dog
lover, often see him in the Town park walking his dogs!
It is nice when you are on FIRST name terms with such exceptional people,
make you feel right at home. Anyway I asked him how business was, did he get
a break over the Festive season, seems he did not, even worked Christmas
Day. We chatted on and then he stood back and said, "My, you look refreshed
and well!" before shaking my hand and walking off.
Normally I would take this as a compliment, but coming from Gerald, I never
really know how to accept it.
Sorry, I forgot to mention what business Gerald is in. He is the local
Funeral Director!
Love and God Bless
Gillian

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2006-10-28 09:36:29

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2006-10-28 03:42:09

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food for thought?]

2006-10-28 01:12:26

I don't think this made it the first time.

Synovectomy?

2006-10-27 18:39:17

<<Did you have a total synovectomy in your right knee or a partial?
What is a synovectomy? I have heard this mentioned a few times and am not
familiar with it.
Thanks,
Nancy

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2006-10-27 05:48:22

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2006-10-27 01:49:17

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2006-10-26 19:10:11

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2006-10-26 16:13:07

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The Flu Type A

2006-10-26 12:39:36

In a world that is ever changing, it sure is nice to know that 2000 has
started like another other year!
.................'news just in, the Hospitals in Dublin have cancelled all
elective surgery, due to a might, could be, who knows, flu epidemic' Yep
that just came off the television.
Meanwhile in England that have stated the fact, "A Flu Epidemic".
Why do we not know? Well seems we have no collators! Leprechauns who count
how many patients IN hospital, occupying a bed, preferably still alive,
suffering from flu, type A strain!
Now for it to be an epidemic, the facts state that 400 out of every 100,000
people must be SICK! We only have a population of 3 million, so whoever is
expected to count, must be slow!
Meanwhile I am still stuck on the no doubt medical terminology, 'elective
surgery'. Who elects who for surgery, or are you nominated initially and
then the vote is taken and counted? Patient A 400 votes, Patient B 600
votes, Patient C failed to make the nomination, as they died waiting!
Yes folks it has been one of THOSE weeks. I should have realised the real
situation, my Karma is out, when I visited my physician on Thursday. I had
the appointment, but Moms need was greater than mine. Mom woke looking like
something one would view on the X Files, red eyes, and I hate eyes! So I
stepped aside to allow my physician, who is also a optometrist, to examine
my Mom. Seems she has a problem with her tear duct, although her eyes were
watering profusely! After he had finished with Mom, he then had me, but I am
easy! Sorry not that type of easy! I already telephoned through my list of
prescription drugs and just wanted a letter for a shoulder x-ray. Nice man
wrote it out, I collected the prescription, plus one for Mom and we left.
Next stop was the Pharmacy;Chemist here, and I handed over the
prescriptions. In return I received what I can only describe as my 'suicide
pack'. Enough drugs in enough quantities to make the A bomb obsolete! I
asked if they had a long shelf life, the technician replied in the
affirmative and therefore I wondered why they did not keep them on their
shelf! I try to keep a small stock in the home, small stock, but for some
reason my physician decided I should set up my own pharmacy, I think!
Having dropped Mom off as her sisters, I went to the hospital.
The Radiology Department was busting at the seams, patients hanging out of
everywhere, including the new MRI scan! Yes we now have a MRI scanner, BUT
it is not operational! Why? Because no one knows how to use it, but it makes
a comfortable place to wait, horizontally. They are waiting for some digital
telephone line to be installed, so that the images can be transmitted to
Cork Hospital, where at least some members of staff know how to read them!
Knowing my luck, I will come across these images next time I try to send
e-mail! Oh look a chest cavity, brain and liver, where has my server gone?
Some poor Cork technician will no doubt receive the technical information on
my server Indigo, and diagnose the patient with chips!
Anyway I handed over my letter, got in the queue for the MRI scanner. Why
wait standing while you can wait laying down? Twenty minutes passed, I was
getting closer to the MRI bed, fourth in the queue, when a clerk called my
name. I approached the counter whereupon she said, "Did you injury your
shoulder?" I had to think about that one, is PA a self inflicted wound? I
replied, "I have Psoriatic Arthropathy!" She took several steps back and
said, "Is it contagious?" Going to hospital for a simple x-ray is akin to
"Mastermind" these days. I retorted, "Well it really depends on how long you
keep me!"
Love and God Bless
Gillian

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2006-10-26 02:31:32

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2006-10-25 21:33:30

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to Cilla/Newly diagnosed

2006-10-25 15:21:55

Hi!
My husband has had PA for over ten years now, and takes (I correct myself from a
previous message) .8 cc MTX per week, to be increased this week to 1.0 cc. He
had a lot of trouble with the side effects taking the meds orally, but the
injections have really seemed to help. He does have many joints involved in his
arthritis, so I can't be helpful with that. My suggestion is this: his
rheumatologist has him taking folic acid to help with the side effects. Are you
taking this supplement?
take care, Cilla
Laurie

Where was everyone on Thursday?

2006-10-25 12:03:12

I did not get any posts yesterday. I was worried! I have not
posted lately. I have been busy with the kids. My PA is about
the same. My P still looks really good compared to what it was
like. I think the MTX may have helped even though I was on a
small amount. I am glad to see posts coming again. I hope you
are doing ok Gill!
Lee Ann

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2006-10-25 09:57:02

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2006-10-24 17:52:33

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Y2K

2006-10-23 23:57:22

Hi All
I had an harassing day Monday, burnt out the batteries and the back up went
as well.
However I decided to visit a chat room, see if perhaps a few good laughs
would ease my agitation. A few minutes into the chat, I got hit by a rather
severe pain, but just put it down to the arthritis. I posed the question, is
this pain from the arthritis or perhaps another mild heart attack? Then I
decided that perhaps I should not be so calm cool and collected about life
and went to A & E. They stuck little patches on my chest, akin to the:
'Smoking patch', 'HRT patch', 'Pain patch', and on my ankle, which was not
paining me but there you are. I was then wired to a white trolley, which had
the ability to draw squiggles, pretty pictures. While this was taking place,
my mind went off on another plane.
Just say I decided to give up smoking, used this patch. Then say I was also
menopausal, used that patch. Well why not the Pain Patch, I have arthritis.
Now with these new added patches, I would soon be one big PATCH! I had
visions of my 'death certificate', Cause of death: Patches!
While I was chuckling to myself, the machine got its own back. Yes unless I
was mistaken it had just shocked me, so much for being earthed! I was then
taken to the ward, where more patches were stuck on me!
My only complaint, if they stick them on, they should take them off, seems
fair!
I ended up removing the ankle patch myself.
I did ask the doctor if I had what I thought I had. He asked me what I
thought I had, and I replied, "The Y2K Millennium Bug?" He nodded, so that
is the confirmation!
Every Country in the World has spent BILLIONS of Dollars on ME and I am
still alive and kicking. I admit I must be the only human walking the planet
to be affected by the Y2K and so late after the New Year, it can only happen
to me, of that I am convinced!
Its like they say, you cannot keep a good thing down.
Love and God Bless
Gillian

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2006-10-23 21:55:26

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2006-10-23 18:11:17

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2006-10-23 11:23:03

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2006-10-23 05:56:15

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2006-10-22 22:26:20

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tendonitis

2006-10-22 10:16:45

hi, i'm doing well with my PA at the moment except for my right elbow which
is consistently hampered with a very painful tendonitis. i'm on
indomethicin 75 mg sr every 12 hrs. for the PA and though never pain free
am not ready to jump ahead. the elbow is on my dominant side so resting it
is a joke. i feel some relief from a hot pack i secure to the elbow after
microwaving. it too can be impractical because of the weight it carries. am
open to any suggestions. also the stiffness that drove me to confirm a PA
diagnosis in the first place is again very much effecting my sleep...waking
up to change position, rolling over etc. i am so frustrated and tired. i
welcome any thoughts...mo(not mike)

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2006-10-22 07:20:14

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2006-10-22 00:54:33

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2006-10-21 19:51:16

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2006-10-21 15:17:34

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to Bunny

2006-10-21 13:51:29

Hi Bunny. I was given some excellent advice when my PA turned into something
more than a few aches and pains. "Get Ye to a rheumatologist!" I repeat this
advice to any who will listen, although it seems to annoy strangers who
don't appear to have anything wrong with them ;-]
When you have a reliable diagnoses from someone qualified to give such, you
can use your general practitioner to take blood, write scripts and report to
your rheumatologist. This is not said "tongue in cheek".
I live in the country (Victoria, Australia) and our 2 local GPs are very
good doctors with much more experience than most of their city counterparts.
Nevertheless, one didn't think I had PA because it "affects the last joint
in the fingers" and I was only affected in the hips, knees, ankles and
shoulder. I also had carpel tunnel syndrome and what appeared to be a
damaged nerve in my foot. They would operate to fix the carpel tunnel (they
do it a lot - plenty of shearers around here) and send me to an orthopedics
bloke for the foot. (A simple operation) The other GP figured I needed anti
inflammatories (NSAIDS) and systemic cortisone (Prednisalone).
My wife is a nurse. She phoned another nurse/friend who phoned her
Rheumatologist friend and I jumped the queue.
Half an hour of prodding and twisting and asking questions (eg. What does
the "C" mean in MC2?) and the Rheumy confirmed that I indeed had PA but knew
bugger all about physics. The carpel tunnel?.... well that's what it was,
but caused by the PA and an op was not appropriate! The nerve damage in the
foot? Ditto! Prednisalone? Already overweight (I insisted I was "cuddly" so
he bought me flowers and took me out to dinner) and already taking tabs for
hypertension, pred was not a good idea at all. I started on MTX 7.5mg
(methotrexate) and for a while was taking 6 Voltaren a day. Twice the max
dose! He also ordered 3 ampulles of cortisone injected into each knee!
WOW!!!!!
And that's what the GPs said, too. But they did it, and now, five months
down the track, I'm better than I was before it flared, I take 15mg MTX
weekly with no apparent side effects, other than an irresistible urge to
ramble on for ever when I try to write a short note, and am now down to 1
Voltaren a day. I'm so glad I was given good advice.
Paul.
ps
I'd like to (ramble some more) wish everyone a happy and comfortable new
year.... may you never need Epsom salts!

[FW]Happy New Year

2006-10-21 05:59:26

Tu correo gratis en MixMail http://www.mixmail.com
Inicia tu navegacion en http://www.ya.com
Hello AP-friends,
No I Have not forgotten you since I feel so much
better. It is just that I have been very busy reading
the Archives since Digest 0. First I browsed through
them but then found them so enlightning that I started
printing them out. That was fine for the first couple
of weeks but then the messages became more and more
and my bookshop ran out of printing-paper.
My intention was to find out how and why people choose
a certain kind of treatment and how we, each
individually, react to our disease. Medical statistics
or those from laboratories, mean very little from the
human point of view, but as we, in our group, speak
freely about our life, worries and other privacies I
thought this would be really interesting. For example,
a nearly sixty year old, young girl like me, living on
my small island without small children or outside job,
must need have a different attitude than a young
mother with a demanding social life.
Forgive me if I express myself not clearly; blame it
on the language, since over twenty years I have not
used Englisg regularly but for reading.
Anyway, that is, at least for to-day, not the reason
for writing you. I only want to ask if you are all
prepared for the "effects" of 2000, whatever they
are.I thought of taking some measures but didnot find
any to take. My water will run into the tanks on the
roof whatever happens (it comes from the mountains)
and if the electricity goes I only will have to go on
the roof with a bucket), the climate is so that we
never need heating, the deepfreezer (when the lights
fail) will give enough to give a party for all our
neighbours, who also have freezers so we will have to
gorge ourselves, since we are used to emergencies on
my little island I always have candles and gas-lights,
cooking is no problem because we always have to use
gasbottles and they are full and I have 100 tins of
catfood bought when they had a special offer) so "I'am
o.k. Jack".
Rests me to wish you all again all the best for the
New Year when I will write more seriously about my NEW
TREATMENT which I have started. Love to all.
Margaretha
Tu correo gratis en MixMail http://www.mixmail.com
Inicia tu navegacion en http://www.ya.com

THE MONTH AFTER CHRISTMAS

2006-10-20 23:47:09

THE MONTH AFTER CHRISTMAS

Y2K

2006-10-20 12:42:14

Hi All
Our Government here have arranged for every household in Ireland to receive
a FREE Millennium Candle! The idea, come sunset on 31st December, we are to
ignite our candles to welcome in the NEW light of the Millennium. Various
Cities will have the "New Light Ceremonies", however the weather forecast is
rain and strong winds. How they are expecting the public to keep the candle
alight, wait and see.
Our TV station, we only have FOUR, not fifty seven, are starting their
broadcast at 9.30am and we shall view the New Year as it hits New Zealand,
Australia and so on. This broadcast will finish at 9.30am New Years Day, 1st
January, by which time we should be in LA! Around the world in 24 hours!
The New Year will be exploded in with a fireworks display in Dublin, as well
as FREE music concerts, so stay glued to your televisions for live pictures.
Remember Dublin is FIVE hours behind New York, so our New Year will start at
7pm New York Time!
As for the BUG? Well if my theory of arthritis being a hypersensitive
reaction to an infection is right, guess we will all be in bed with the Y2K
bug! Imagine going to the doctor and saying, "I have the Y2K bug, any chance
of some antibiotics?"
We have little here run by computers. Our electricity is generated by
burning Turf, no nuclear power or hydro electric power. The telephone
systems crashed on the last odd day, but expect there to be a few Gremlins
in that system yet. The hospital ONLY got there computer systems last year,
so they should be fine. The traffic lights are preset, just like flashing
Christmas lights, so they should keep working.
Our Navy, well three boats are in Port due to Christmas Break, that leaves
one P42 going around in circles, guarding the coast. The airforce? Well we
have one aeroplane, but that is not armed. The Police have a light plane and
a helicopter, neither carry weapons. The army, well our Tanks are somehwat
old, still have to push them!
Ireland is NEUTRAL, we killed each other up until this year, but refuse to
kill anyone else!
Therefore I doubt WE will have any real major problems. However, if by
chance a Nuclear Weapon does launch, can you please give our Airforce
several days notice, as we have to pull the elastic band back on the runway,
before our unarmed aeroplane takes off.
I am sure we could be of some assistance, take photographs of this missile
if nothing else!
Love and God Bless
Gillian

The Godmother!

2006-10-20 06:57:10

I was aroused from a peaceful sleep by those immortal words, "Muuum, mummy!"
having survived Cork Hospital, I returned to England in order to visit my
nephews, as promised. My new surroundings took time to comprehend, as I was
staying with my Sister in her new home and all was unfamiliar. I distinctly
remember informing my nephew Simon, age three, that under No circumstances
was he to wake me up. Both boys rallied at 6am, their young spirits
stimulated into action. The passing years and health problem had mellowed my
spirits, I no longer rallied, I just came too, sluggishly.
While the only light, a street lamp, bore through the bedroom window, I
could hear Simon crying for his Mother. I hauled this body into a vertical
position, donned my bathrobe and fingered my way out into the hall. I
suspected Simon had woken from a bad dream, in which case I would merely
tuck him in, then whisper "Good night", what could be easier?
The luminous face on my watch displayed 3am, my brain had not engaged, as I
fumbled with his bedroom door. Groping for the light switch, I jerked the
stud down. The brilliant bulb blinded me. As my pupils adjusted I detected
Simon sat upright in bed, staring at me!
His initial words, "My bed is wet Gillian" failed to register as I replied,
"Well never mind Simon, turn over and go back to sleep". I am not at my
mental prime this early. "WET" his bed is wet? Moving into the room I found
myself staring up at the ceiling, "Simon has it been raining then?" He
looked sleepy and bewildered.
Then it hit me, 'He had wet his bed!'
My course on child psychology down loaded: young children do this and under
no circumstances do you scold them. Grasping for words I stuttered "No I do
not think it has been raining!" Simon was now kneeling on his damp bed,
inspecting the darkness outside his window.
I had to pull myself together, which at 3am is easier said than done. A plan
of action was called for, "Well never mind, you can come and sleep with me!"
Logical thinking, that would save me a few hours. I grabbed his hand, "But I
do not want to sleep with you, because you smell!"
The ability to scent runs deep in the family genealogy. If it does not smell
friendly, the chances are it is not friendly. Simon did have a valued point,
my bathrobe was still ingrained with that septic odour from hospital.
So he chose not to sleep with me. "Simon get out of bed!" He sat their
studying me. Simon is not a computer or a dog, he is just a child, so I
would have to engage my child mode. "Simon what do you think we should do?"
that should evoke some response. "Mummy changes my bed Gillian!", and at
this point I started to hate my sister.
I was in a strange house at 3am, with a three year old, whom was expecting
me to put his damp world to right.
I perused the room. A wardrobe stood in the corner, aside a chest of draws,
all decorated with "Thomas The Tank Engine" and friends.
Pyjamas, that was it, Simon needed dry pyjamas, but where were they? Simon
then said, "My pillow is wet as well, but Tigger is dry!" I could see the
other stuffed toys applauding Tigger, as he managed to swim for dry land.
"Simon where does mummy keep your clean pyjamas?", the answer failed to come
but he held onto Tigger! "My bed is wet Gillian" as if I did not know, he
had to repeat it! I turned to the toy box behind me. On top was a large
remote control Thomas The Tank Engine, so I picked it up. Simon witnessed
this action, curiously he cried, "Gillian what are you doing with Thomas?" I
replied, "Thomas is helping me find your pyjamas!"
I had suddenly gained his full attention, my words were being digested, cogs
were turning and then he said, "Don't be silly, Thomas is a Tank Engine!"
3am is not the right time to be demanding money back on a child psychology
course, 9am would be soon enough.
"Simon you are going to have to tell me where mummy keeps your clean
pyjamas, PLEASE!"
So I grovelled, come on it was 3am! The word please had a impact. "Their in
that draw with the Fat Controller on!", pointing towards a rather enormous
man dressed in a top hat, whom I assumed was the controller.
Sure enough, several pairs of clean, dry, ironed pyjamas were stockpiled, in
that exact precise draw! Taking the first pair I spread them on the floor,
"Come on then jump out of bed and put these on!"
At the age of three, children put nothing on. They attempt to put items of
clothing on, but usually end up with legs and arms incorrectly positioned.
Therefore I peeled off the soggy pyjamas, while Simon held onto Tigger. I
admit, the trousers looked wrong, but it was now 3.30am and not a fashion
show!
While I am bending unbendable legs, manoeuvring Tigger under arms, into
sleeves and hunting for hands, let alone toes; I know he had them to start
with, Simon said, "You are going to die Gillian!", how very observant of
him!
His body now occupied clean dry pyjamas, while his mind dwelled on the
deeper questions of life, but stage one as far as I was concerned was
complete.
Stage two, change the bed.
"Simon do you know where mummy keeps the bed covers?" He was now playing
with Thomas and my watched showed 4am. "Simon it is very late, I am tired,
PLEASE come to bed with me!" Simon let go of Thomas, looked up and said, "I
want to sleep in MY bed with Tigger!"
For the first time in my life, OH how I wished I was Tigger!
Love and God Bless
Gillian

Welcome <a href="/group/PsoriaticArthritis/post?postID=Mt7IJkB2GNra5J46VEIeoPlzVAZ41DpNI3HauDa-qI88OToa1akvugapmnlKfMJwC6egVfsFh6FBiUJk_Q">lrosenfeld@...</a>!

2006-10-19 23:44:59

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2006-10-19 18:28:57

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2006-10-19 14:52:01

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2006-10-19 10:34:23

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2006-10-19 00:40:58

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2006-10-18 20:29:03

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Web site

2006-10-18 13:34:28

You may already know about this site.
Being new to this group, I don't know if it's been shared or not.
<http://members.tripod.com/lvngwell/
Living With Chronic Illness where there are links to
"Current News," "Support Group," and "Coping Tips."
Hoping this is useful to some,
Patty Bacon in a frost covered Pineywoods of East Texas. Brrrr ...

Visit to the Doctor!

2006-10-18 12:44:15

I got up early this morning, before the cackle of the morning chorus, mainly
because I had no sleep whatsoever last night. It was bad enough when the sun
set, the Swans were at it, the Geese were at it, Calling Birds screaming my
name, French hens laying eggs in my bed and the Partridge is keeping a very
low profile. Yes as I went into the kitchen to put the kettle on, out
flooded a river of Goats milk, as the eight maids were still at it! The
Swans then vacated the bathroom, decided they should check this new river
out!
I told my ageing physician my problem, he told me to unsubscribe to Onelist,
try another hobby, before prescribing valium and sleeping draft's. Must
admit, just having someone to listen to MY problems helped. Slight problem
with Mother, not only did she take the staircase to the upper floor, she
also ascended the loft ladder, no wonder I could not locate her. Then she
decided that the cold water tank, was really a bath and got stuck! Just as I
was trying to disengage Mother from the tank, the door bell sounded, so I
had to drop her back in, descend two sets of stairs and open the door. I was
greeted by NINE LADIES DANCING, so I told them that "Riverdance Auditions"
were being held in Dublin! I just peeked out a moment ago, the ladies are
still their! You are correct, in this season of goodwill, well I could not
leave them their, so invited them in. At the moment they are practising
there set dancing skills ON the dinning room table and the NOISE! Meanwhile
I emptied the Maids a milking buckets, put the contents in the bath, after
removing the Geese and decided there was only one thing for it! Well if it
was good enough for Cleopatra, its good enough for me! Thankfully no asp was
seen! I took the entire contents of the valium bottle, plus several sleeping
drafts and yes I am having severe side affects, I am wide awake!
Love and God Bless
Gillian

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2006-10-17 23:59:14

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2006-10-17 18:01:22

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Thankyou for the welcome.

2006-10-17 16:20:24

Thank you all, especially Fergus, NewJersey11, and Gillian for the nice
welcome and the advice. It's so nice to have others who understand what the
heck I am talking about without having to run down a long explanation of what
in the heck Psoriatic Arthritis is. I don't mind doing the explanation, which
most people find interesting, but really don't comprehend the seriousness of.
I think it's time for me to ask for pain meds for those nights when I am
awaken every hour in because of the pain.
Gillian, would you please explain to me what a "Tens" machine is?
I am very thankful at this time to not be pestered by the skin problems that
I have had in the past. (knock on wood, twice!) I am currently just fighting
the arthritis. I just retired from 20 years as an orthodontic assistant last
month and it has been absolutely wonderful. My husband was quite wary of me
quitting work and just staying home, but it has been the best thing I could
have done. I was having an increasingly difficult time doing my job. The pain
and the limited flexibility in my fingers and wrists where getting in the way
and I was getting frustrated in having to ask other assistants to do little
things for me. I hated that! I also have four school age children and the
increased pressure of being a working mom was just tooooo much! Now I can
concentrate on being a good mom and doing what I need for me. I can now plan
my day around when I feel good instead of getting four kids ready for the day
by 7am. On those days when I could hardly crawl out of bed, it took all my
strength just to get myself dressed.
One other note. Now that I have been home, my husband is getting a bigger
picture of what mornings are like for me. We are usually separated in the
mornings, either he or I gone. He mentioned that I was worse this month, but
in reality it was just same old thing for me. I think he is starting to see
how really hard it was for me to continue working. Funny, how you can live
with your spouse and not really understand all they are going through.
My Rheumatologist mentioned at our last visit that Enebrel is going through
US trials right now to get approval for PA. They are finished with the PA
trials here in the NW. Should be 6 months or so. She also mentioned that
there are 3 0r 4 more new PA meds trying to get approval out there so this
next year will be fun to see if there is anything good coming to help us.
FINALLY. Now if they can just get something to help those awful looking
nails! If they wouldn't look on it as a minor irritation. That would be my
wish!
One more question. I know this is long, sorry. Has anyone heard of the
topical over the counter tar lotion called "Oxipore"? I used to be able to
find it in the drug store and it worked wonderful for me but I can't find it
anywhere anymore. It was watery like dark alcohol and stung like heck when I
put it on at first but it started to clear me up within 3 days usually. I
could use a q-tip to apply and save getting my fingers all messy too.
I am looking forward to getting to know all of you better.
Shelli

Where I am at today (Michelle)

2006-10-17 04:45:05

I got a ride into NYC yesterday for a rheumatoogist emergency visit. For the
previous few nights, I had been completely unable to sleep due to severe pain
in my left hip joint as well as the bursa in the upper portion of the same
leg.
My doc agreed to shoot some steroid into the bursa- it was the most severe of
the two spots.
In addition, we added in to the Arava I have been taking since January 50 mg
of Imuran two weeks ago. Now he has added another 50 mg for a grand total of
150 a day along with the Arava. The psoriasis on my hands gas worsened and
become infected. I need to call the derm Monday to get an antibiotic. He had
just injected all the bald spots on my head and several psoriasis lesions on
my scalp which resulted in complete hair loss!
We were forced to increase pain meds (MSCcontin) up to 1-2 30 mg pills every
eight hours as needed for severe pain.This latest pain has to be the worst I
have ever experienced. I just wish, it would die down qa bit so I could get
some decent sleep.
Gillian- I very much enjoy your tongue in cheek letters thanking me for all
the "gifts".
Funny stories sure do take your mind off serious matters at hand!
All my best to everyone.
Michelle

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2006-10-16 23:44:40

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The twelve days ....

2006-10-16 16:14:06

To Gillian.
May I come to visit you on the twelfth day?
I'll bring a camera-crew!
Margaretha.
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That's Torn It!

2006-10-16 14:06:00

Hi All
We had our first snowfall last night, with severe ground frost. The snow is
on the mountains, looks as if God has decided the Christmas Pudding needed a
few shakes of icing sugar.
So this afternoon I ventured to the Town Park with Hermes to meet Rex, the
'love' of her life.
Rex is a retired sheep dog, Collie I think and for some reason Hermes
idolises him. They met during the summer, when I was trying to tempt Hermes
into the Fountain for a cool dip. Hermes refused! Within a few minutes Rex
appeared on the scene, went for his cool dip and Hermes got the idea.
Unfortunately, since then I have been unable to keep her OUT!
Yes animals have love lives as well and who am I to stand in her way?
The paths were icy so we had to be sure of our step, but we made the Park in
good time, only to realise we were alone! You could see the disappointment
in Hermes eyes.
So what do you do with a dog that has been let down? Well I decided to seize
the opportunity to venture into the Children's Play area, akin to an
obstacle course. Apart from slides and swings, they have a rickety rackety
rope bridge', whoopee! So off we jolly well went, although Hermes did look
funny holding on for dear life, legs spread eagle, with claws outstretched.
However we did get across, only to decided to go back the same way. Half was
across the bridge, as it swayed under my weight, the Park Warden arrived and
pointed to the SIGN!
It read, "This Play Area is for Under 12's ONLY!" I read the sign then said,
"Yes that is me, under 12!" He looked at the grey hair, height, weight and
shook his head in disbelief! I replied, "I assume we are talking about shoe
size?"
Between the rope bridge and the slip sliding home, I have managed to damage
the right knee, which just goes to prove, 'you should always act your age
and not your shoe size!'
Love and God Bless
Gillian

to Nancy

2006-10-16 05:36:13

Hi Nancy. Welcome to the list. My name is La and I live in
Winchester, VA. Where in VA do you live? I don't know anyone
with PA to share with either! If you feel more comfortable, feel free
to email me directly at LJacobs@.... Nice to see another
VA person on here.
Happy Holidays Everyone! La
Thought from LaRita
"Strange as it may seem, my life is based on a true story"
Ashley Brillant

Toothbrushes, Bikini Lines, etc.

2006-10-16 00:55:44

Hi Gillian,
You had me laughing while reading your stories about toothbrushes and
bikini lines!!!!!!! Enjoyed them very much.
I don't think that we are all "cured" or have "no pain," I just think we
are too busy to write about it, or think about it. It's a busy time of
the year!!!
Vicki

where is everyone

2006-10-16 00:29:04

To Patty Ba,
<never understood the need for those drinks
Of course, nobody but an alcoholic needs the drink. I
do enjoy my Scotch in the evening but then I never
take any med. except for the last two weeks when I
swallow an NSAID but of course I don't have my toodle.
What you said about those people who try to coach you
into having a glass, well, to me they are stupid,
ignorant and irresponsible. I have a brother alcoholic
and among our friends also some people who have the
same problem and are trying to "go dry". When we have
a party I always have alcohol-free booze and of course
cooldrinks (the same as I have sugarfree things for my
diabetic friend) and we have had guests who tried to
make our "drying-up" friends ridiculous by mocking
them but those people were NEVER AGAIN INVITED IN OUR
HOUSE. Excuse the caps but I mean shouting. What we
don't do is trying to hide the booze. I have spoken to
people of AA and they said it makes the alc. patient
feel inferior. Well, this is another disease as bad as
ours but has no place in the group.
<to decrease my complaints to anyone who doesnot know
first hand what I'm experiencing
You are so right. I have learned that years ago,
People are willing to listen and to help but only for
so long. More so when you have no visible symptoms.
This flare I am going through is very much visible (I
look like Frankenstein's bride, gone wrong) and the
sympathy shown by all is far greater than when I just
walked with a stick trying not to curse every five
minutes. We have a friend who is always talking about
her ailments. Allright, she has them, but in the long
run people have ended up by not inviting her anymore
because it does get boring always to have to listen
what this or that dr. said, about her lab. tests, etc.
I understand het but I do confess that sometimes I
feel like sticking her behind the wallpaper and move
home.
On the other hand, don't misunderstand us "funnies".
In Spain they say: "La procesión va por dentro", which
means that we laugh our heads off but during the night
we sometimes bite our pillow. But is one way to keep
our friends coming to see us when they feel down in
the boots so we can cheer them up.
All the best from M. in the warm Canary Islands (which
don't prevent you from getting PA).
Margaretha.
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2006-10-15 13:24:54

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the world who share our experiences by e-mail almost
daily.
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PsoriaticArthritis@onelist.com.
See our new webpage at: http://www.wpunj.edu/pa/
Welcome
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Robert, Webmaster and moderator
PatB and Patty, Moderators

The Bikini Line?

2006-10-15 09:46:13

Hi Gals. No doubt you know what I am talking about, which is more than I
did, two years ago.
The problem, my beloved sister and my nephews were coming on Holiday. My
sister is or was a Beautician, so she spends many hours looking good. The
boys as I call them enjoy swimming, so no doubt I would be roped in. My
sister is not a good swimmer, so this type of fun activity is left to me,
Aunt, Godmother and lunatic!
Now I knew I would have to wear a swimsuit, after all I would be swimming,
so a bikini would no doubt dissolve. I also knew that my "Unkempt Forest"
needed harvesting and I refuse to use the good old razor! I had a bad
experience in the past, no one told me about the re-growth and I ended up
at the doctors surgery with prickly heat, only it was far from hot! Yes it
was an interesting examination, diagnosis and prescription, but boy did I
itch! So this time I decided to use CREAM, and made double sure it was for
SENSITIVE skin!
So one night I locked myself in the restroom/cloakroom/bathroom, opened the
box, took out a tube of cream, spatula and very important, instructions. I
read the instructions, which basically said I had to locate my Bikini Line.
Well that was a new one on me, but I decided to look for it. Thirty minutes
later I had not located it, perhaps I am abnormal. I must admit it is easier
to locate the 59th parallel, than my bikini line. When God made me he forgot
to mark my bikini line. However, somewhere I do own an old pair of
undergarments, which I am sure came in a box marked Bikini briefs! So I
unlocked the door, went to my bedroom, hunted for said undergarments, put
them on, came back and locked the door. So after that all I had to do was
spread on this cream, and wait!
Within five minutes the elastic went into nuclear melt down! My bikini
briefs were now around my waist, as the cream ate into the material. Panic,
yes I did, wondering what affect this cream was having on my forest! I tried
to scrap the cream off as it landed on the carpet, mirror and ceiling. I
jumped in the bath in order to hose everything down, as I did not want this
stuff to eat through the outer layers of my skin! No matter what I did,
scrap, water, this cream refused to flow away, run off, or deposit itself
anywhere else! In heightened panic I decided to grab some cotton wool, that
caused a bigger mess as did the tissues, but I felt I was getting somewhere.
If anyone had told me that this cream would melt my forest, I would not have
used it!
Three days later the family arrived on holiday and yes the boys wanted to go
swimming. My original fear, "Aunt Gillian how come mummy does not have that"
was not a problem, as my sister did not offer to come with us. However, my
brother-in-law did and by the expression on his face, he could not figure
out if the psoriasis had erupted, or I had broken out in an uncomfortable
rash!
It was almost a fortnight before I noticed a single sapling sprouting again,
then it came out grey!
Love and God Bless
Gillian

Where is EVERYONE??????????

2006-10-15 07:04:11

Hi All
Yes I know it is the silly season, you are all rushing around getting in
food, presents and organising your parties. Just heard on the radio that you
should KEEP taking your medication, and do not stop in order to have a few
drinks!
Having observed the FEW e-mails recently I assume you are all CURED, have NO
PAIN, or EMOTIONAL problems?
Love and God Bless
Gillian

The Problem With Life?

2006-10-15 01:57:09

I agree I came out the wrong way, or perhaps I went in the wrong way, but I
am definitely WRONG!
It could be old age, if you hit that period of your life at 41, mind you
with PA I suppose you do?
I have noticed that as I mature, life gets complicated.
For example, I went to purchase a new toothbrush last Friday, an easy chore
I am sure you will agree, except for me. I was faced by rows, or even rowes
of toothbrushes and I started to realise that I should have majored in this
subject. First we have the bristle, do you have it soft, soft-medium, medium
or hard? Then you have the size of the actual head, small, medium or large?
Then you have the full choice of flexibility, it can bend at the handle,
bend at the neck or bend at the tip? Colour or Colors range from pink, blue,
to yellow, purple or black, I fancied the Black, kinky version. Next is the
price, which started at 70p, went through £1.50 and ended at £15 for a
vibrating one, batteries not included. Then you have a choice over what kind
of clean you wish. You can opt for the hinged jaw, which makes getting to
the rear teeth easier. You can stay at the front, as the toothbrush head it
too large to stick anywhere else, in that region. Child's toothbrush will
allow you to manoeuvre around each single tooth, so there is no rotation
involved. Add to that the Brands, at least ten and well I just stood there
in silence!
Now give credit where credit is due, I did TRY! If they give points out for
trying, well I am by nature a very TRYING person!
After TWO HOURS, I gave up, decided to seek help, so sort a young
individual, called a Sales Assistant. I am sure that is not his REAL name,
but Sales Assistant was his label. "Hi" I said. He took several steps back,
as if this phrase was new to him. "I wonder if you can help me, I need a new
toothbrush!" He replied instantaneously, "They are located on row three
aisle G!"
I then replied, "Yes I have actually located them, but in your opinion,
which one is the best?" Almost before I finished my sentence he replied, "I
am sorry but we are not allowed to divulge that information, as we cannot be
seen to favour any particular brand". So I thanked him for his time and then
proceeded back to the display. Decisions, decisions, what should I do?
I decided that the only way to choose the correct toothbrush, was to close
my eye and grab one! Lucky Dip time!
And that is exactly what I did, knocking most of the other display ones off
the shelf, onto the floor, while Sales Assistants ran in my direction. OOPS!
I also needed toothpaste, but decided the time for purchase was not quite
right!
Love and God Bless
Gillian

To Mo!

2006-10-14 15:09:27

Hi Mo,
We do not live to far away from each. If you would
like to get together to talk about our problems
related to our daily activities and PA. It may be
worth while for the both of us! Let me know!
Thanks,
Ellen

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2006-10-14 13:39:58

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mailing list. We are a group of over 220 PA'ers from
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almost daily.
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PatB and Patty, Moderators

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2006-10-14 05:37:14

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2006-10-13 21:20:27

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Three questions

2006-10-13 15:24:02

Shower - feels great - for about five minutes
Antibiotics - no difference
Sleep - no difference
Since I am afflicted in the lower back only, heating pads (on high) work
great...until you get up....and when I am walking around doing house
work..ice packs shoved down the back of my pants - covering my lower
back and butt...are great...
I really don't know what my butt has to do with all of this, but it sure
does throb...
The doctor seems to ignore my butt complaints...only focuses on my
sacrial area...but I am telling you, my butt hurts like ----! Jayne

toilet / toes

2006-10-13 08:39:22

I remember that when I visited my Aunt's house the toilet is raised up off the
floor by about 6 inches. A very large spacer (wooden box) with a bit of extra
piping. It helped Grandma get up off the toilet. Just think of how it could be
decorated!What helps toes? hmmm.. When they went thru the "popping" stage hubby
would hold them for warmth while we were in bed watching TV. Sounds strange but
true! He would also pull them when they got stiff. Just think liscense to
inflict pain on a spouse! Socks or better yet the sheepskin slippers. Cold soaks
or hot bubbly foot soaks with epsom salts. The stores sell powders for the foot
baths. Even a lttle of the "oatmeal bath" stuff feels good. Massaging in lotions
helps. Both the massage and the lotions. Take care,Pat B

Three questions

2006-10-13 03:42:10

Hot pulsating showers help a lot. (Hot tub with jets on high is even
better.)
Just went thru two series of antibiotics -- didn't notice any thing with the
PA.
Sound sleep seems to help (after the morning stiffness wears off.) I start
every morning with a 20-30 minute shower to get started.
By the way -- I live in Gray, Tennessee (in the Northeast corner.)
Paul

Toilet etiquette

2006-10-13 02:55:37

Hi Pat,
Yes, you said it right when you said " after sitting there thinking about it
for a bit". That is exactly what I always do. Try to figure out how to get
up! Shift myself around on the seat to see if I can possibly manage to get
up! I just love saying this when I am 32 years old!!
Angela

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2006-10-12 00:40:15

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