Update from Carol M.
Hi Everyone,
I want to start by thanking all of you who responded to my distress. There
is no way I can tell you how much your concern meant to me. What I did not
say, was my Internist had 2 possibilities of what was going on with me. One
was Scleroderma (which can be extremely bad) or Sjorgens ( not good) aong
with the PA. It turns out to be confirmed Sjorgens. The Dr. said that it
will probably feel like a combination of strep throat & mumps when it is in
flare, etc. This also has fatigue, joint swelling, muscle pain etc. as part
of it, as well as the PA. I also have a flare of PS#@%$*&^. He increased my
prednisone (which is like a wonder drug for me) and gave me quidelines on how
to help use the medication to deal with all of this. He said he never wants
me to go below 5 mg of prednisone daily. He also instructed that when I have
a major life event e.i. childs wedding; stress; new job: etc. that I can
increase the prednisone to 10mg for a few days to a week to get thru and
enjoy the situation. Then I can wean down again. He also said that I should
carry water with me at all times, and be extremely careful about tooth care,
and regular dental check ups. He actually said that he thought I was
progressing better than he thought I would from my last check up. :0) But
explained the "flare" process, and that It will get better. He also
discussed the importance of getting more rest and better nutrition than I
have been doing (my husband snitched on me!).
But, again, Thank ALL of you for your prayers and concern. It got me thru
until I could see the Dr. and get some tools and advice to work with.
<<<<<Gentle Hugs & Prayers
Carol M.